Why Give to Live Like Lou?

Maybe, like Neil’s family, you reject the notion that ALS is incurable… and agree research for a cure is simply underfunded.  You understand that the neurological underpinnings for ALS are related to Dementia, Huntingtons Disease and Alzheimers, and you want smart researchers to focus on these diseases and you want to support the $10 million “Live Like Lou Center for ALS Research” at the University of Pittsburgh’s Brain Institute.  Or, maybe you want to help patients in Western Pennsylvania, who face the impossible expense that comes with an ALS diagnosis – it costs, on average $250,000/year to live with this disease.  Or maybe you want the children of ALS families in our region to continue with normal childhood activities like summer camp, taking dance lessons, receiving holiday gifts and paying for college, despite the extreme financial burden facing their families.

Whatever your reasons, THANK YOU for supporting our mission to leave ALS better than we found it.  Our funds are raised through a series of special events and individual and corporate donations.  We do not employ anyone, do not rent office space, and our events are entirely grassroots-led and volunteer driven – from lemonade stands, to bike rides, parties, golf outings, donut dashes and baseball games!

We are proud that most of our funds have been raised in Western Pennsylvania and are being spent in Western Pennsylvania.  Learn more about our grants:

LiveLikeLou.org is a donor advised fund of The Pittsburgh Foundation, a 501(c)(3) organization, which provides outstanding administrative support through an administrative grant. Donations to LiveLikeLou.org are fully tax-deductible to the extent allowable by law.  Grants from the fund are made after careful consideration of need and responsible management of our investments.  Our commitment is to treat every dollar raised as an important tool to be used in the fight for people living with ALS.

Thank you for joining us in this journey!  You may donate through the links below.

If you live in Western PA, you can give to LiveLikeLou through the United Way, just designate LiveLikeLou (#10605251) during your employer’s annual United Way campaign.