We're Hiring

ALS Community


As the Live Like Lou Foundation grows its reach, we are adding a member of our staff team to drive strategy for acknowledging and appreciating donors at all levels and to develop meaningful relationships with individual and corporate donors, and community stakeholders. Reporting to the Live Like Lou Foundation Executive Director, this position plays an integral role in Live Like Lou’s 2025 strategic plan and in contributing to the attainment of annual goals.



  • Design and implement an organization-wide stewardship program focused on communications, recognition, reporting, and stewardship  
  • Maintain donor relations standards and donor-centric programming
  • Work closely with members of the Board of Trustees and manage board-level stewardship (phone calls, emails, letters)

Portfolio Management

  • Create a strategy for portfolio development for this role and the Executive Director with cultivation, solicitation, and stewardship strategy in mind
  • Maintain a portfolio of 50-75 mid-level donors and prospects and manage and expand the prospect pipeline for all fundraisers
  • Cultivate positive relationships with current and potential public and private funders including corporate sponsors, individual donors, and industry contacts
  • Secure new, renewed, or increased funding through multiple platforms including direct mail, digital, social, and peer-to-peer
  • Help identify major gift prospects for the Executive Director and Board of Trustees in partnership with the board's Development Committee
  • Track and report meaningful donor contact activity in Bloomerang

Development Communications

  • Lead the preparation of development-related communication including correspondence, proposals, and reports
  • Write and produce donor profiles
  • In partnership with the Executive Director, write content for electronic and mailed appeals and set strategy for the annual cadence of fundraising activities
  • Work closely with the Program and Engagement Director to share stories of impact from ALS families and emerging ALS investigators
  • Serve as the primary point of contact for Live Like Lou’s peer-to-peer philanthropy; manage the front-facing sites on Live Like Lou’s peer-to-peer platform (Givebutter)

Day of Giving

  • Coordinate an annual giving day to drive engagement and philanthropy
  • Manage campaign platform, synchronize appeal messaging across channels including direct mail, email, social media, calling, and texting
  • Coordinate a presence for #GivingTuesday and other strategic opportunities for giving/stewardship


  • Equivalent of a bachelor’s degree and at least five years of professional work experience, including three years in development/fundraising-focused nonprofit work
  • Passion for relationship building and sharing the impact of philanthropy
  • Fundraising database/platform experience required, preferably Bloomerang and/or Givebutter
  • Strong organizational skills and the ability to manage multiple priorities/activities in an independent and unstructured work setting
  • Attention to detail and high level of accuracy
  • Ability to maintain confidential information with discretion
  • Excellent interpersonal skills, including the ability to work with a diverse group of people
  • Strong writing, copy editing, and analytical abilities with experience preparing reports and making effective and persuasive presentations to internal and external constituents
  • Proven ability to successfully work remotely and independently
  • Proficient computer skills (Microsoft Office, fundraising CRM/database, Asana or other project management tool)


  • To provide maximum value and enhance the employee experience, Live Like Lou partners with Lou Gehrig’s Fraternity, Phi Delta Theta, for employee management services. Phi Delta Theta Fraternity is a 501(c)(7) nonprofit organization that is currently working towards being recognized as one of the best places to work in the greater Cincinnati area.
  • Salary offers will be determined by the candidate’s creditable years of experience in conjunction with internal equity considerations based on the organization’s current compensation practices and market research for similar positions.
  • Traditional benefits package includes 100% employer-paid health insurance, health reimbursement arrangement, 401k retirement plan with a 4% match and additional performance-based contributions, paid holidays, paid vacation days, paid health & wellness days, additional paid time off for office closures at years end, and short- and long-term disability insurance and life insurance.
  • Non-traditional benefits include flexible workspaces, a personalized travel benefits program, technology stipends with mobile phone plan reimbursements, holiday events, and employee recognition.


  • This is a full-time position based remotely with opportunities to work from the Phi Delta Theta General Headquarters in Oxford, Ohio
  • Must have ability to initiate and manage distanced communications/events through Zoom
  • Prolonged periods of sitting at a desk and working at a computer


Interested candidates should provide a cover letter, resume, and three professional references to Executive Assistant/Human Resources Specialist Cynthia Buresh by February 12. References will not be contacted without the candidate's awareness/until late stages of the interview process.


The Live Like Lou Foundation is a national nonprofit organization whose mission is to create and connect communities to stimulate emerging research and uniquely support families affected by Lou Gehrig’s disease. We do this work in honor of our namesake, Major League Baseball Hall of Famer, and Luckiest Man, Lou Gehrig, and the more than 20,000 people living with the 100% fatal disease of amyotrophic lateral sclerosis (ALS) each day across North America. Our vision to leave ALS better than we found it and we do this in three main ways:

  1. Provide meaningful support to people living with ALS and their families through our volunteer program, Connect and Serve, matching volunteers with families for one-time or short-term projects in and around the home; Iron Horse Scholarships for dependents of ALS warriors to pursue higher education; a partnership with Hope Loves Company camps for children in ALS families; financial grants to offset the burden that often comes with a of Lou Gehrig’s disease diagnosis.
  2. Invest in ALS research to find treatments or cures by attracting and retaining early-career ALS researchers and encouraging novel and pre-clinical scientific collaborations through our partnership grants, career development awards, postdoctoral fellowships, and emerging ALS investigator collaboration and learning events.
  3. Amplify Lou Gehrig’s story, his legacy, and what it means to Live Like Lou, through meaningful philanthropic partnerships, including Lou Gehrig’s Fraternity, Phi Delta Theta, with 170,000 living members, 14,000 undergraduates on nearly 200 college campuses; and our growing communities of support through ALS families, ALS researchers, and industry partners.

The Live Like Lou Foundation was established in 2017-18 after experiencing success with its grassroots efforts in western Pennsylvania to honor its namesake, Lou Gehrig, and advance research and support of those impacted by Lou Gehrig’s disease (ALS). Founded by Neil and Suzanne Alexander, Neil—like Lou Gehrig—was a member of Phi Delta Theta Fraternity and both men courageously lived with ALS.

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