Hope Loves Company provides emotional and educational support to children and young adults who have or had a loved one battling amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s disease. HLC camps are free-of-charge to ALS families, and year-round programming is offered to support children and caregivers.

The Permobil Foundation believes that regardless of disability, everyone deserves a chance to reach their dreams without limitations. No person should be excluded from opportunity due to a disability. That’s why they are dedicated to enhancing the quality of life by assisting with Permobil products and chair donations so those with ALS can live their lives without limitations.

Augie’s Quest to Cure ALS raises funds and awareness urgently needed to advance cutting-edge research, fast-track effective treatments, and ultimately, find a cure for ALS. Providing resources is vital to keeping the ALS community strong, so this link includes access to a regularly-updated resource library.

Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policymakers, and offering vital resources for people impacted by ALS. I AM ALS has a tremendous list of resources for those newly diagnosed with ALS. I AM ALS founders also developed Synapticure to bring personalized care online and to your home. Synapticure is built by patients, caregivers, and clinicians to transform care for those living with ALS.

Team Gleason’s mission is to empower and improve the lives of people living with ALS to help them continue to live productive and purposeful lives. They have provided more than $10 million in adventure, technology, equipment, and care services to thousands of people living with ALS.

The Morris ALS Principles were established to unite as leaders to end ALS/MND. We take ownership of our disease so that the road to cures is faster, equitable and more humane. We are not subjects or victims, and are only occasionally patients, a term which implies passivity. We are a relentless community working alongside researchers, policy-makers and clinicians to identify and cure this heterogeneous disease. We demand a seat at the table before decisions are made in drug trial design, research, healthcare policy or anything that affects our care. From this point forward, we will not tolerate siloes, disorganization or lack of urgency by any agency or organization that serves us.

Her ALS Story seeks to raise awareness that ALS impacts young women diagnosed before 35 and provide a community for them to connect, learn from each other, and find support so they can live their best lives.

Team Hillard Foundation was born out of four years of telling our story and raising awareness about ALS. Currently, there is still no cure, but the research field is now ripe with potential new drugs and treatments, but it is often difficult and costly for people facing ALS to be enrolled in clinical trials. As a family who knows firsthand how devastating it is to live with ALS and how difficult it is to manage care, we decided we wanted to continue our work but open the field for where our fundraising dollars can go. Each year we will choose a treatment or research entity devoted to finding a cure, an organization helping families facing ALS, or a local family in need. No one on our board will require compensation, so 100% of your donation will be given to charity. Team Hilliard’s mission is raising awareness about ALS and supporting research, treatments, and families facing Lou Gehrig’s disease.