Kylan’s connection to ALS runs deep, as her mom, Sandy Morris, was diagnosed with ALS in January of 2018. Sandy quickly became a force in ‘ALS Land’ advocating for people living with ALS and dedicating her limited time to improving conditions for those living with the disease. Sandy’s particular passion for implementing and upholding a patient-centric approach in all areas of ALS, especially for clinical trials, led her and a team of advocates to draft the Morris ALS Principles. After full-time caregiving and advocating alongside Sandy for all four and a half years of her disease progression, Kylan continues to carry on her legacy in every possible way. She co-led a team of advocates to develop the ALS Clinic Advisor, a tool for people living with ALS and their caregivers to efficiently navigate services, trials, and resources throughout their ALS care journey.
Live Like Lou Impact 💙
Kylan has served on Live Like Lou’s Iron Horse Scholarship Selection Committee since 2023 and currently chairs the ALS Family Support Committee, ensuring families remain at the center of the Foundation’s work.
Off the Field 🏟️
A Cal Poly graduate with a degree in communications, Kylan lives in the Bay Area and has strong roots in Northern California’s Lake Tahoe community. Kylan ran the 2022 NYC Marathon in her mom’s memory two months after her passing while raising over $20,000 for Project ALS in the process.
